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chordomafoundation.org
Understanding chordoma
Chordoma is a rare type of cancer that occurs in the bones of the skull base and spine. It is diagnosed in just 1 in 1 million people every year.
Jul 6, 2016
Chordoma Cancer Treatment
Gary Sinise Said His Late Son Mac’s Cancer Was So Rare, He Had '25 Different Drugs': ‘You Throw What You Can at It’
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Cara Lynn Shultz
Feb 7, 2025
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“In April 2016, I was diagnosed with a rare type of bone cancer called a chordoma tumour in the base of my skull. When I first saw the MRI scan of my brain, I couldn’t believe what I was seeing. My consultant said it was the biggest tumour he’d ever seen, and would need very careful planning and treatment. I had my first operation in June 2016, a 24-hour surgery spread over two days, and I had several more surgeries before flying to Jacksonville in Florida to receive proton beam therapy. This be
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Audrey's while fighting cancer(CHORDOMA) Yan yong after nya mag code pilit ko sya kinakausap kinukulit kc nakkatulong sa knya na lagi sya kinakausap. Kung nkaka salita lang sya sasabhin nya skin kulit mo mommy ingay ingay mo🤣🤣hehehe iloveu palagi ate audrey nmin... #princessaudreybajao #FightCancer #fightchordoma #Godiswithus #GodIsAHealer #giveasia #helpcancerpatients #RaffyTulfoinActionRaffyTulfoinActionOfficialFacebookGroup #StarsEverywhere #JessicaSoho | Lenny Perez
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Chordoma is a very rare form of primary bone cancer, accounting for less than 5% of all primary tumours found in the bone. Variation of symptoms, along with its slow-growing nature, often makes a diagnosis of chordoma difficult and lengthy. Thankfully for David, a visit to his local Specsavers marked the beginning of a life-saving journey 💚 For Rare Disease Day, David shares his story to encourage others experiencing symptoms to visit their opticians or GP so that more patients survive and thri
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