Acute Hepatic Porphyria - Two of Me Documentary | Pinpoint AHP®
Acute Hepatic Porphyria - Two of Me Documentary | Pinpoint AHP®
Feb 25, 2022
porphyria.com
The Mixed-Up Brothers of Bogotá
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The Mixed-Up Brothers of Bogotá
Mar 22, 2020
NY TimesSusan Dominus
While people try to make the connection between vampires and porphyria, it’s not really there and connecting the two only stigmatizes the disease. #vampire #blood #disease #tiktokdoc #LearnOnTikTok | Zachary Rubin, MD
1:30
While people try to make the connection between vampires an…
8.7K views4 months ago
FacebookZachary Rubin, MD
Addi (her chosen name is now, Adri) has finally found her forever home! She has two brothers (also adopted) who adore her and she is thriving in so many ways! Adri has congenital erythropoietic porphyria and her compassion and love for those around her shine brightly everywhere she goes. @rodsheroes is so honored to have met her in Colombia and to have been a part of this amazing journey. We can’t wait to see what is next for this amazing family. Stay tuned!•#butterflyskin #congenitalerythropoie
0:43
Addi (her chosen name is now, Adri) has finally found her forever home…
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FacebookRODS Heroes
Acute Intermittent Porphyria vs Porphyria Cutanea Tarda
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Acute Intermittent Porphyria vs Porphyria Cutanea Tarda
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