Working through some behaviors with Kreed using behavior supports in his Dynavox Compass! He still had a few behaviors (kicking, slapping and yelling) but we worked at it again and finally we were able to go into the store and he was great. He earned a shower back but not five guys ha! But he's doing great. Again working through severe behaviors with his device! | Kreed's World: A Complex Journey Through Autism
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Working through some behaviors with Kreed using behavior supports in his Dynavox Compass! He still had a few behaviors (kicking, slapping and yelling) but we worked at it again and finally we were able to go into the store and he was great. He earned a shower back but not five guys ha! But he's doing great. Again working through severe behaviors with his device! | Kreed's World: A Complex Journey Through Autism
2.9K viewsApr 22, 2015
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Who was Kreed before his medical conditions took over and no one heard him? This guy! This amazing, smart, social, happy, joyful guy! Just one year before his death. My name is Kreed. | Kreed's World: A Complex Journey Through Autism
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Who was Kreed before his medical conditions took over and no one heard him? This guy! This amazing, smart, social, happy, joyful guy! Just one year before his death. My name is Kreed. | Kreed's World: A Complex Journey Through Autism
8.4K viewsApr 8, 2024
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In 2011, we got to work on having Kreed experiencing everything...inlcuding rollerblading!!! Severe autism never stopped him from at least trying and discovering that he had no limits, except those which society placed on him! | Kreed's World: A Complex Journey Through Autism
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In 2011, we got to work on having Kreed experiencing everything...inlcuding rollerblading!!! Severe autism never stopped him from at least trying and discovering that he had no limits, except those which society placed on him! | Kreed's World: A Complex Journey Through Autism
4.3K viewsMay 25, 2020
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Saddest video ever! I was talking to Kreed intending on having a full discussion about Phoenix and Flagstaff and the why's. Kreed starts to cry at the questioning of flagstaff and couldn't finish the talk!!!! I'm about to cry myself!!! To be continued.... | Kreed's World: A Complex Journey Through Autism
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Saddest video ever! I was talking to Kreed intending on having a full discussion about Phoenix and Flagstaff and the why's. Kreed starts to cry at the questioning of flagstaff and couldn't finish the talk!!!! I'm about to cry myself!!! To be continued.... | Kreed's World: A Complex Journey Through Autism
172 viewsApr 30, 2014
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Kreed tends to obsess even when I tell him he is going somewhere. So we added a quick new button where he can answer the question himself. It's helped a ton! | Kreed's World: A Complex Journey Through Autism
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Kreed tends to obsess even when I tell him he is going somewhere. So we added a quick new button where he can answer the question himself. It's helped a ton! | Kreed's World: A Complex Journey Through Autism
5.2K viewsJan 14, 2015
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Kreed is still in pain and still has respiratory issues- in fact he may be in respiratory acidosis AGAIN. This morning we talked and decided that if Kreed was going to rage in pain or continue to have respiratory issues, we would at least have as much fun and joy as possible whenever he can. During the active part of this video, Kreed's respiratory alarm is going off the whole time ha, but he enjoyed himself so much and it was the highlight of his day. So really and truly, we strive to give him
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Kreed is still in pain and still has respiratory issues- in fact he may be in respiratory acidosis AGAIN. This morning we talked and decided that if Kreed was going to rage in pain or continue to have respiratory issues, we would at least have as much fun and joy as possible whenever he can. During the active part of this video, Kreed's respiratory alarm is going off the whole time ha, but he enjoyed himself so much and it was the highlight of his day. So really and truly, we strive to give him
15.7K viewsApr 30, 2016
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Kreed had some issues all morning and so finally I told him he was grounded and what would happen. He stopped immediately as we went over his behavior. Here is part of our conversation. He is gaining a huge awareness of his own behavior recently! | Kreed's World: A Complex Journey Through Autism
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Kreed had some issues all morning and so finally I told him he was grounded and what would happen. He stopped immediately as we went over his behavior. Here is part of our conversation. He is gaining a huge awareness of his own behavior recently! | Kreed's World: A Complex Journey Through Autism
4.6K viewsNov 16, 2014
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A video of Kreed learning language while waiting. This video was significant because waiting often caused severe problem behavior. Kreed didn't know what to say while waiting, or for how long or he wasn't even sure what he was waiting for. He would either engage in behaviors to let me know how unhappy he was or would ask the same question over and over. Instead, I added some language to his device that made sense for how it seemed he felt and invited him to talk about it with me. Made all the di
15.3K viewsFeb 3, 2022
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We got Kreed back for another moment. This is why we just go with it and take every moment as it comes He raged so bad all morning and was very out of it all day and then boom all of a sudden he came around this evening enough to bowl. We'll take it. | Kreed's World: A Complex Journey Through Autism
6.9K viewsJun 13, 2015
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New self help video! Teaching Kreed bathroom routine- this time we show the motor planning involved in teaching him new self help skills. It generally takes Kreed a couple weeks to months to get the motor planning done with self help. It's not about if he can or can't do it...it's simply about taking the time to teach him. We don't have a time table. We take it one day at a time and provide him with the support he needs. As a result of this approach, we don't feel pressure or get upset if he can
4.8K viewsDec 10, 2014
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How an argument with Kreed goes now :) love that he can argue! He's learning more language to use on his device to go back and forth with me. Now we are driving home listening to Ariel sing Part of Your World. | Kreed's World: A Complex Journey Through Autism
51 viewsJan 4, 2014
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Kreed had a meltdown un-related to his blood sugar. When it was over we always talk about what happened. I always want him to know why he has to wear helmets or gloves etc. It's important for this discussion to happen, as we discussed on Wednesdays webinar. After this discussion we moved on and talked about nightime and food. I love hearing his thoughts and knowing he understands and can show me he understands. And can have his voice heard. It's been an amazing journey. | Kreed's World: A Comple
5.8K viewsApr 3, 2015
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Kreed has a little something to say to everyone who shared, donated and supported his fundraiser to get him his continuous glucose monitor and supplies and specialized bed for him!! We have reached our goal and could not be more thrilled that so many have come together to help him! Give a little, change a lot. Thank you from the bottom of our hearts, especially to the Ride to Give army! They are amazing!! | Kreed's World: A Complex Journey Through Autism
10.6K viewsApr 27, 2015
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Kreed back in the day with his first device!! We were about a couple months into using the device and it all started with his favorite things. Videos or things to do! This weekend in particular we were using the device to request all the things. This is also when I began to be in his life full time. I miss him so much. This video also reminds me of our time with each other and how much the device was always apart of our life together. My heart aches for him. | Kreed's World: A Complex Journey Th
5.9K viewsJan 21, 2024
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Video depicting Kreed talking about his pain and wanting to see the doctor. And asking "what are the steps we need to take?" To go to the doctor lol! Never under estimate your child and their ability to learn language. Not just requesting. Not just one word answers. But conversation. Describing pain and sickness. Our kids are capable of so much! And communication devices give our kids so much more language if we believe they can and will learn to communicate! Before a device he would have been s
7.6K viewsSep 17, 2017
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Video of Kreed at Larkburger. He's been having some rough days but again, we keep him going. He starts out well here but works himself up. The camera goes black- I did not know it was still recording. He began to hit himself in the head so I had to think fast- he's too big to just haul out of his seat like we used to do. If he didn't have his device at this stage of the game I don't know what we would do. He was able to talk himself out of being so angry. Because he could communicate he didn't h
306 viewsNov 3, 2015
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Part 2: Warning- can be hard to watch, Kreed does throw his head back one time. But this is an example of a pain meltdown- not one when he wants something but one when he does not feel well- he obsesses over food. So I have to work him down from it. A year ago he would have had to be restrained quite a bit. Now he can use his words on his device and talk his way through it with minimal aggression. But my poor boy. In so much pain. | Kreed's World: A Complex Journey Through Autism
481 viewsFeb 9, 2014
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This moment. Captured. Kreed yelling. Handcuffed. Helmet on his head. This moment. I didn’t know how to help him. I’m trying to figure out how to figure it out while he raged. I needed to check his oxygen, I knew, at the very least. I could only do that with him restrained. He was low and dropping. This moment. I only had seconds to minutes to figure out what was wrong with a man child punching and kicking and biting so hard he tore the flesh from his toes and hands and bashing his head in. I ch
8.2K viewsJul 2, 2024
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This was probably the number one most liked video ever. Three years ago. Kreed rocking it out while his body was in failure. But as long as he was happy and feeling joy, nothing else mattered! If you’re going to die, I hope everyone gets the chance to go out like Kreed. He never stopped his passion for life one time until there was nothing left he had to give. And thank you to Ty for giving so much of himself to Kreed while he was in the hospital. | Kreed's World: A Complex Journey Through Autis
11.7K viewsMay 5, 2019
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Discussion of behavior at the chiropractor. We made a deal and he decided if his behavior warranted fries or not. | Kreed's World: A Complex Journey Through Autism
5.1K viewsNov 14, 2014
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Welcome to the most interesting (NOT) video ever on Kreed's world. We did this walk for a good thirty minutes. I would ask him occasionally to look at things then he would start walking again. Never figured out why he took this walk around Walmart. Cracked me up. Wish I would have narrated it! I could have been funny and sarcastic. For now enjoy a snapshot of our walk through Walmart | Kreed's World: A Complex Journey Through Autism
5.7K viewsMay 23, 2015
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Trying to use Kreed's device to help wake him up! He stirred some more! (Dynavox Compass) | Kreed's World: A Complex Journey Through Autism
22.5K viewsJun 27, 2015
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Well, we thought about waiting until tomorrow but everything was charged and ready to go and Kreed was in a good mood. So we went for it. Kreed did awesome. Just a little jump when it inserted- but seriously- he did awesome and it will only get easier. Can't wait to finish calibration and get some numbers!!!! | Kreed's World: A Complex Journey Through Autism
4.3K viewsMay 16, 2015
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Nothing was sweeter than hearing Kreed’s voice. And the things he loved. | Kreed's World: A Complex Journey Through Autism
3K viewsNov 2, 2017
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Really missing this guy right now. He loved Halloween! I will post pictures later | Kreed's World: A Complex Journey Through Autism
16.3K viewsOct 31, 2024
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My grief is still a guttural scream in my throat. The pain can still weigh me down. Because he had autism and no one understood him. Or they didn’t listen when he did. Or they wouldn’t treat him because he had autism and could be aggressive. Because because because. Changes nothing. He still died and to this day, no one has a good answer for why his body gave out. And to this day I still rage. | Kreed's World: A Complex Journey Through Autism
13.2K viewsNov 12, 2024
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In Kreed's own words. We think from what he said and also taking his blood sugar it was a combination of pain in his broken foot and low blood sugar. His rages spike his blood sugar. As soon as it was over it dropped rapidly to hypo. He is calm now. I'm laying and half sleeping lol and he's chatting away on his device. The dogs are chillin at his feet keeping watch. | Kreed's World: A Complex Journey Through Autism
6.1K viewsFeb 4, 2015
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A video explaining what's been happening, especially the events of last night. Today has been on and off. We have figured out that it appears he has a cold. Which causes massive headaches and weird feelings for him. And his blood sugars plunge every few hours. We have to dose him more frequently with mmj to keep him comfortable. When it wears off he goes back to raging. It's quite the dance we now have to do. And exhausting. So I say to people- are you autism aware? Do you know that some familie
132 viewsMar 17, 2016
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This video is long! Kreed's developed some wicked bad behaviors since his blood sugars have plummeted. He will often continue these behaviors even once he feels better. He will yell instead of using his words so super working on him saying versus yelling. He will also hit, pinch, bite, throw and kick. So again, we discuss on device. Here is a snapshot of an outing that didn't go well at first- including yelling in my face while I calmly talked to the clerk at petsmart this turned into giving me
7.4K viewsMay 19, 2015
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We posted this video probably two months ago and I never realized in the end Kreed would die. We were so focused on his living and now I know why. We accepted nothing less than giving him an epic life. I talk about this a lot in the blog post The Luxury of Anger http://kreedsworld.blogspot.com/2014/11/the-luxury-of-anger.html?m=1 Kreed lived a hard life, much harder than I would ever have. He needed help with everything, communication was difficult and the world was hard to understand. Not to me
10.7K viewsJun 9, 2016
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