Cystic fibrosis taught me to prepare for the worst, but pregnancy taught me to make room for hope and trust my body alongside medical care. Through my journey to motherhood, I learned that CF doesn’t ...
Cystic fibrosis care is changing quickly — with better treatments, longer lives, and new tools like telehealth. This is pushing us to rethink what high quality, individualized care should look like.
While complications from cystic fibrosis created a rocky start to Noelle’s story, our faith has kept us strong and been a guiding light through the darkness.
For those living with cystic fibrosis, it does not pause when you clock in to work. It doesn’t wait until meetings are over or the workday officially begins. CF is present long before arrival — in ...
An elite recognition and fundraising program celebrating Nashville’s most engaged young professionals. Know a standout young professional who is active in their career and community? Nominate them to ...
I used to measure my life with cystic fibrosis and CF–related diabetes (CFRD) in numbers. Lung function. A1C. Blood sugars. Weight. Enzymes. Appointments. I learned early on that survival meant ...
Although I’m of Indian origin, I was born in South Korea, a country I associate with wonderful natural beauty and amazing cuisine. My early life unfolded against the vibrant backdrop of cherry ...
My family and I just made a huge move from Oklahoma to Oregon for my husband’s new job — our own Oregon Trail, but with meltdowns and caffeine instead of oxen and dysentery. Survival level: expert.
Lack of CF awareness, expertise, and health care infrastructure, especially in low- and middle-income countries, may prevent people living with cystic fibrosis from receiving timely and appropriate ...
I remember the exact moment we realized Trikafta wasn’t the miracle drug we hoped it would be. Our 5-year-old daughter, Olivia, had become inconsolable and withdrawn, and was saying words that no ...
I have not been able to work because of my cystic fibrosis, so I rely on government-funded health insurance. I sometimes go without treatments because my insurance coverage is limited and doesn’t ...