HOLLY Nayler was just days away from her third birthday when she suffered her first seizure. It was the earliest sign of a rare form of childhood dementia, a disease doctors would later diagnose ...

PPT1 is a recombinant protein used to treat an ultra-rare disease called Batten disease CLN1 for which there is ...

Sad news to share today. Charlotte Gray died last Friday at age 13 and one half. The daughter of producer Gordon Gray and Kristen succumbed in her battle against the rare degenerative brain disorder ...

Add Yahoo as a preferred source to see more of our stories on Google. A fundraiser for a rare neurodegenerative disorder affecting a four-year-old girl with a connection to racing was highlighted ...

Holly Nayler, a 5-year-old from Essex, battles CLN2 Batten disease, a rare and fatal childhood dementia. With hundreds of ...

EDEN PRAIRIE, MN / ACCESS Newswire / April 9, 2025 / Today, the Born and Schneider family announced the launch of Helen's Pink Sky Foundation, a new nonprofit dedicated to accelerating research, ...

LINCOLN, Neb. (KOLN) — This weekend, hundreds of people gathered in Lincoln for a conference dealing with Batten Disease. It’s rare, it’s always deadly — and there is still no cure — affecting only a ...

Doctors told Gordon Gray his daughters would not live to see their 12th birthday — -- The Hollywood couple who started a foundation to quickly fund research to find a cure for Batten Disease, ...